• Join us for

    22k for 22q 2016

    Rock 'n' Roll Half Marathon

    and Family Fun Run Series


Newly Diagnosed

Once the diagnosis of a 22q11.2 deletion has been made, what should happen next? 

Click to read more about recommended treatment.

Same Name Campaign

One diagnosis-many names, learn how we are bringing consistency to the many names for 22q11.2.

Find out more about the Same Name Campaign