Board, Staff & Advisors

Board, Staff & Advisors

Members of the International 22q11.2 Foundation’s Board of Directors are volunteers and represent parents and professionals in the greater 22q community. The Board meets a minimum of four times per year to develop long-term plans, to ensure that the mission of the foundation is being implemented and to provide oversight of fiscal operations.

Sheila Kambin, MD
Chairperson, Parent
Broomall, PA

Marc Weinberg, Esq.*
Vice Chairperson, Parent
Holland, PA

Suzanne DiCamillo
Treasurer
Moorestown, NJ

Anne Bassett, MD
Medical Director, Psychiatrist
University of Toronto
Toronto, Canada

Missy Disibio*
Parent
Cherry Hill, NJ

Mindy Taylor Dodge
Parent
Denver, CO

Melissa Maisenbacher, MS, CGC
Genetic Counselor
Clinical Projects Manager, Natera
Virginia Beach, VA

Nicole Mark 
Parent
Boca Raton, Fl

Donna M. McDonald-McGinn, MS, CGC*
Associate Director, Clinical Genetics
Program Director, The “22q and You” Center
The Children’s Hospital of Philadelphia
Philadelphia, PA

Christine Moriconi, Psy.D., RNC, LMFT
Parent
Huntington Valley, PA

Edward M Moss, PhD
Pediatric Neuropsychologist
Bryn Mawr, PA

Paula Uccello
Parent
Colchester, CT

Donna Cutler-Landsman, M.S.
Parent, Cutler-Landsman Consulting
Madison, WI

* Founding Board Members

Communicate and identify needs in our community and develop a plan to implement. Provide necessary support to the primary activities and operation of the foundation.

Michael Weinberg,  Co-Chair

Email: michaelweinberg2012@gmail.com

Rebecca Osberg, Co-Chair

Email: raredisorders@yahoo.com

Aine Lawlor

Quinn Bradlee

Tessa Kohler

Kayla Disibio

Stephen Moriconi

Rebecca  Osberg

Email: raredisorders@yahoo.com

Michael Weinberg

Email: michaelweinberg2012@gmail.com

 

Carol Cavana

Administrative Assistant
carolcavana22q@aol.com

Anne Bassett, MD – Chair
Medical Director, Psychiatrist
University of Toronto
Toronto, Canada

Peggy Eicher, MD
St. Joseph’s Children’s Hospital
Paterson, NJ
Feeding Specialist
http://feedingcenter.owenweb.net/about_fc.html

Brenda Finucane, MS, LGC
Associate Director
Autism & Developmental Medicine Institute
Lewisburg, Pennsylvania

Patricia H. Glick, DMD
Phoenix, AZ
Orthodontics
http://www.thebarrow.org/Neurological_Services/Cleft_and_Craniofacial_Center/index.htm

Paula Goldenberg, MD
Parent, Geneticist
Massachusetts General Hospital
http://www.massgeneral.org/children/services/treatmentprograms.aspx?id=1815

Alex Habel, MD
Great Ormond Street Children’s Hospital
London, UK
General Pediatrics
http://www.gosh.nhs.uk/

Richard Kirschner, MD
Nationwide Children’s Hospital
Columbus, OH
Plastic and Reconstructive Surgery
http://www.nationwidechildrens.org/22q-deletion-syndrome-center

Bruno Marino, MD
University La Sapienza
Rome, Italy
Cardiology
http://www.uniroma1.it/didattica/master/2015/cardiologia-pediatrica

Bernice Morrow, PhD
Albert Einstein College of Medicine
Bronx, NY
Molecular Genetics
http://www.einstein.yu.edu/faculty/4279/bernice-morrow/

Solveig Oskarsdottir, MD
Queen Silvia Children’s Hospital
Goteborg, Sweden
General Pediatrics and Immunology
http://www.labome.org/expert/sweden/sahlgrenska/oskarsdttir/s–lveig-oskarsd–ttir-176131.html

Nicole Philip, MD
Hopital de la Timone
Marseille, France
Genetics
http://fr.ap-hm.fr/service/departement-de-genetique-medicale-hopital-timone

Peter Scambler, MD
Institute of Child Health
London, UK
Molecular Genetics
http://iris.ucl.ac.uk/iris/browse/profile?upi=PSCAM65

Kate Sullivan, MD
Children’s Hospital of Philadelphia
Philadelphia, PA
Immunology
http://www.chop.edu/doctors/sullivan-kathleen

Ann Swillen, PhD
University Hospital of Leuven
Leuven, Belgium
Educational Psychology http://www.kuleuven.be/wieiswie/en/person/00040725

Jacob Vorstman, MD, PhD
University Medical Centre
Utrecht, The Netherlands
Child Psychiatry
http://research.umcutrechthersencentrum.nl/whos-who/bio/jacob-vorstman/

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