November is 22q Awareness Month

History of 22q Awareness Month

 #22qAwareness Month began back in 2014, when proud Mom, Raj Hemus, created a Facebook Page, called 22qAwarenessDays, that has now grown to over 10,000 followers! Raj reached out to the International 22q11.2 Foundation in 2014, and asked if we would share her site on our website and social media outlets – and of course, we agreed – as we all have the same drive to help further the mission to raise awareness, and help people learn about 22q11.2 deletion and duplication — the most common genetic syndrome NO has ever heard of!

We need your help getting the word out about 22q11.2 Syndromes. November kicks off the largest campaign of the year to raise awareness and raise funds for The International 22q11.2 Foundation, Inc! To donate directly to this campaign, click here. 

Share our stories

Share your own story or view the full selection of stories here from our Need Inspiration Page. Choose to share them on Facebook (@22qFoundation), Instagram (@22qfoundation) or Twitter (@22qFoundation)

‘What’s 22q?’ … a phrase we need to stop hearing. We want the world to know how complex a condition this is, how much all around support is sometimes required and how against many obstacles these amazing, beautiful children survive and thrive. Not forgetting the few that are lost far, far too soon. We want the world to know all sides and to recognize the beauty within these individuals.

Share the stories as you see them on your page or feed and encourage your colleagues, family and friends to do the same.

Interested in Advocacy Declare November 22nd for 22q11.2!

Please help us create 22q11.2 Deletion and Duplication Awareness Days around the world! Help designate November 22nd as “22q11.2 Awareness Day” in your state, region or country. Learn more   

Hand Outs

The International 22q11.2 Foundation is pleased to send you 10 free, wallet-sized, 22q “Z-Cards” that unfold into eight highly informative panels. These cards are ideal for sharing with others and will serve as a quick reference about 22q. Learn more

22q11.2 Clinic Constorium Spotlight

The International 22q11.2 Foundation is spotlighting each of the dedicated 22q clinics around the world, as they share their information, so families can learn more about the clinics, their offerings and resources, as well as location and specialties.

Visit our Fundraising Toolkit

There are many ways you can help with various fundraising ideas from home. Learn more

Visit our ongoing campaigns:

Same Name Campaign

Tell 22 About 22q Campaign

School Bag Campaign 

Calendar Campaign 

Don’t forget to mark your Calendars for the Tenth Annual 22q at the Zoo for Sunday May 17th, 2020….

Many thanks on behalf of The International 22q11.2 Foundation and #22qAwarenessDays

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