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Press Releases

May 2015: 22q at the Zoo Awareness Day

January 2015: The International 22q11.2 Foundation is pleased to announce that Robert Miller has joined our team as part-time Acting Director. Robert brings over 40 years of experience to the role including nearly 14 years as Executive Director of the National Fragile X Foundation (NFXF). During his time at the NFXF, Robert was able to guide the organization from being a one-person office representing an unknown condition to a robust and internationally recognized organization that substantially improved awareness, diagnosis and treatment of Fragile X. We are looking forward to Robert bringing that experience to the 22q community and helping us with the many, similar challenges.

 

News Articles

May 2016: 22q at the Zoo Awareness – Alyssa Tholstrom holds her son Landon Tholstrom, 2, on her lap during 22q at the Zoo at Zoo Montana. Read full article here. 

May 2016:  22q at the Zoo Awareness – Jody Jones gives an interview regarding her son Caleb Jones and raising awareness for 22q. Read full article here.

November 2015: An 11 minute interview on Raising Awareness by Rebecca Osberg with Sheila Kambin, MD, Parent and Chair of The International 22q11.2 Foundation, Inc. http://www.raredisorders.info/Ro_-_Sheila_Interview__1_.MP3

September 2013: Parents say genetic syndrome 22Q lacks awareness

April 2012: 22q at the Zoo Awareness in Cincinnati – Bettsy Leech, Genetic Counselor at The 22q/VCFS center at Cincinnati Children’s  gives an interview with a parent named robin regarding 22q and our worldwide 22q at the zoo day.

May 2011: 22q at the Zoo Awareness  –  Former Chair of the Foundation, Carol Cavana gives an interview regarding 22q at the zoo and her son Louis.

 

 

 

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