Navaeh Myers

On May 19th 2008 a beautiful baby girl we named Nevaeh was born. She was diagnosed with a Ventricular Septal Defect (VSD) at 2 months old.   We proceeded to take Nevaeh to Miami Children’s Hospital to see a cardiologist. Additional testing was performed and it was confirmed that Nevaeh did have a VSD that was very large. Her aortic arch was going to the right, which is reverse of what a normal aortic arch is, and what caused the vascular ring that she also had. The cardiologist called her condition “heart failure.” After monitoring it was determined that Nevaeh would need corrective open-heart surgery. On January 6, 2009 Nevaeh had her surgery to correct her heart defect and also remove the vascular ring around her esophagus and trachea. Her surgery went very well and we were told that Nevaeh was going to have some developmental delays due to her condition. It was not until we went back to Miami Children’s Hospital for her one-year post surgery check up that her cardiologist expressed concerns with the delays in her achieving her milestones. She proceeded to review the notes of the surgeon who performed the operation and she discovered that the surgeon did mention that he had not seen evidence of a thymus gland. At this time, her cardiologist ordered a Fluorescence in Situ Hybridization (FISH) test. The results came back positive for a condition known as 22q11.2 deletion syndrome. Nevaeh is 4 years old now and is still non-verbal but reaching some milestones.

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