Quotes from our 22 Community

“I would encourage all my family and friends to learn about 22Q. This was an unknown diagnosis to me, even working in the field of developmental disabilities, until my 2 nieces were diagnosed. They are wonderful young ladies who sometimes struggle with the every day things so many of us do without thinking. It breaks my heart to see how people treat them and many others like them. What a blessing they are missing! Please join me in learning all we can and supporting those families who are impacted by 22q.”


 “Thank you for getting back to me. Ryan, my nephew passed away in 2000 and had what they referred to as DiGeorge syndrome at that time. I am so glad an organization like this exists today because at the time we spent hours online trying to find information on something we never heard of before. It is really nice to see how much information and guidance your organization can provide to a family at such a difficult time. It’s also so nice to see pictures of children doing so well with 22q deletion. Wonderful to see such progress. Good luck!”

Kristine


“So grateful for the wonderful resources provided by the International 22q11.2 Foundation.“

Parent from IL – Jamie Calandriello


“I’m happy there is a place that parents can share our challenges and our victories. New answers come every day. Thank you for the continued research and knowledge you share. We have to stick together otherwise we may completely fall apart as we keep fighting for our kids.”

“My son and I have 22q we thank you for all you do!!”

Mom from Texas


“I want to say thank you for supporting families whose child has this. It’s awesome to see that they have a voice! Thank you and keep up the work!”

Mom from Oklahoma


“I’m happy there is a page that other parents can share our challenges and our victories. New answers come everyday. Thank you for the continued research and knowledge you share. We have to stick together otherwise we may completely fall apart as we keep fighting for our kids.”


 

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