Dear Friends of The International 22q11.2 Foundation,
At this very special time of year, we wanted to take a moment to thank you, our 22q families, friends, supporters and professionals for your continued support!
The International 22q Foundation assisted hundreds of children and adults with 22q11.2 deletion and duplication this year. We provided general information, 22q education, and recommendations for care. The generosity of our donors makes this important work possible, each and every day.
We’d like to share a recent story with you… “My son Amos was diagnosed with 22q when he was just two days old following the discovery in utero of a heart defect associated with the condition. Neither me nor my wife had ever heard of 22q, and while we would come to learn a lot about it over the following months, no one could tell us what this diagnosis would mean for our child. That uncertainty is difficult for all parents of children with 22q, and it is often made harder by a lack of knowledge even within the medical community.
I have not historically been a fan of campaigns that simply promote awareness of a health condition, but it seems that that is exactly the kind of advocacy 22q needs. With more awareness, more children can be diagnosed at an early age, like Amos, and get interventions as early as possible. More recognition will also, hopefully, bring in more research dollars to find better treatments. The International 22q Foundation has been an outstanding source of information, community, and most importantly, awareness.
Today Amos is 15 months old and doing amazingly well health-wise and developmentally. No one can predict their child’s future, but we see our son reaching for the stars every day.” -Shai
Stories like this are only possible with the generous support of our donors. With the International 22q11.2 Foundation in your corner, we are “STRONGER TOGETHER”… and parents like Shai can navigate their child’s first years better with more certainty, more calm, and more clarity for their family. Please consider a year-end donation to enable us to provide the same level of support to more families living with with 22q11.2 deletion or duplication. Your tax-deductible gift will make a lasting impact in the lives of families in need.
Our goal is to raise $20,000 before year-end. Would you be willing to make a special year-end donation of $50, $100 or whatever you can afford to help meet this goal and serve more families in need? You can even make a monthly contribution, if that is easier for you — please check out your options on our donation page.
Thank you in advance for your consideration. Wishing you a magical holiday season and best wishes for a healthy 2018!
With warm regards,
Sheila P. Kambin, MD
Proud Mom and Board Chair
On behalf of International 22q11.2 Foundation, Inc.