Board, Staff & Advisors

Board, Staff & Advisors

Members of the International 22q11.2 Foundation’s Board of Directors are volunteers and represent parents and professionals in the greater 22q community. The Board meets a minimum of four times per year to develop long-term plans, to ensure that the mission of the foundation is being implemented and to provide oversight of fiscal operations.

Marc Weinberg, Esq*
Chairperson, Parent
Holland, PA

Missy DiSibio*
Vice Chairperson, Parent
Cherry Hill, NJ

Melissa Maisenbacher, MS, CGC
Recording Secretary
Genetic Counselor
Virginia Beach, VA

Suzanne DiCamillo
Moorestown, NJ

Anne Bassett, MD
Medical Director, Psychiatrist
University of Toronto
Toronto, Canada

Manish Arora BDS, MPH, PHD
Edith J Baerwald Professor and Vice Chairman
Division Chief,  Environmental Health
Department of Environmental Medicine and Public Health
Icahn School of Medicine at Mount Sinai
New York, NY

Debbie DeLoach
Greensboro, NC

Mindy Taylor 
Denver, CO

Nicole Mark 
Boca Raton, Fl

Donna M. McDonald-McGinn, MS, CGC*
Associate Director, Clinical Genetics
Program Director, The “22q and You” Center
The Children’s Hospital of Philadelphia
Philadelphia, PA

Christine Moriconi, Psy.D., RNC, LMFT
Huntington Valley, PA

Edward M Moss, PhD
Pediatric Neuropsychologist
Bryn Mawr, PA

Paula Uccello
Colchester, CT

Elizabeth M. Vinhal, Esq
Basking Ridge, NJ

Donna Cutler-Landsman, M.S.
Parent, Cutler-Landsman Consulting
Madison, WI

* Founding Board Members

Anne Lawlor

22q11 Ireland 

Dublin, Ireland


Giulietta Angelelli Cafiero

Aidel 22

Rome, Italy


Julie Wootton


Max Appeal

Stourbridge, United Kingdom


Maria Kamper

22q Foundation Australia & New Zealand

Communicate and identify needs in our community and develop a plan to implement. Provide necessary support to the primary activities and operation of the foundation.

Michael Weinberg,  Co-Chair


Rebecca Osberg, Co-Chair


Aine Lawlor

Quinn Bradlee

Tessa Kohler

Kayla Disibio

Stephen Moriconi

Rebecca  Osberg


Michael Weinberg



Anne Bassett, MD – Chair
Medical Director, Psychiatrist
University of Toronto
Toronto, Canada

Peggy Eicher, MD
St. Joseph’s Children’s Hospital
Paterson, NJ
Feeding Specialist

Brenda Finucane, MS, LGC
Associate Director
Autism & Developmental Medicine Institute
Lewisburg, Pennsylvania

Patricia H. Glick, DMD
Phoenix, AZ

Paula Goldenberg, MD
Parent, Geneticist
Massachusetts General Hospital

Alex Habel, MD
Great Ormond Street Children’s Hospital
London, UK
General Pediatrics

Richard Kirschner, MD
Nationwide Children’s Hospital
Columbus, OH
Plastic and Reconstructive Surgery

Bruno Marino, MD
University La Sapienza
Rome, Italy

Bernice Morrow, PhD
Albert Einstein College of Medicine
Bronx, NY
Molecular Genetics

Solveig Oskarsdottir, MD
Queen Silvia Children’s Hospital
Goteborg, Sweden
General Pediatrics and Immunology–lveig-oskarsd–ttir-176131.html

Nicole Philip, MD
Hopital de la Timone
Marseille, France

Peter Scambler, MD
Institute of Child Health
London, UK
Molecular Genetics

Kate Sullivan, MD
Children’s Hospital of Philadelphia
Philadelphia, PA

Ann Swillen, PhD
University Hospital of Leuven
Leuven, Belgium
Educational Psychology

Jacob Vorstman, MD, PhD
University Medical Centre
Utrecht, The Netherlands
Child Psychiatry

Carol Cavana

Administrative Assistant

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