November is 22q Awareness Month

November is 22q Awareness Month

JOIN US in spreading the word about 22q11.2 deletion and duplication during November’s 22q Awareness Month!

YOU are important and we need YOU to help get the word out about 22q11.2 Syndromes. November kicks off the largest campaign of the year to raise awareness and raise funds for The International 22q11.2 Foundation, Inc! There are LOTS of ways that you can get involved… see below and jump in to make a difference and shine the light on 22q! 

 SAY IT LOUD!

Share messaging about 22q11.2 deletion and duplication to help others understand the genetic disorder.

We have several campaigns designed to help you spread the word—pick one below and share:

Same Name Campaign

Tell 22 About 22q Campaign

School Bag Campaign 

Calendar Campaign 

**Also, LIKE and SHARE our posts daily on Facebook and other social media during the month to reinforce the message!

SAY IT PROUD!

Understand the History of 22q Awareness Month

 #22qAwareness Month began back in 2014, when proud Mom, Raj Hemus, created a Facebook Page, called 22qAwarenessDays, that has now grown to over 10,000 followers! Raj reached out to the International 22q11.2 Foundation in 2014, and asked if we would share her site on our website and social media outlets – and of course, we agreed – as we all have the same drive to help further the mission to raise awareness, and help people learn about 22q11.2 deletion and duplication — the most common genetic syndrome NO ONE has ever heard of!

RAISE FUNDS!

ASK OTHER TO SUPPORT THE CAUSE! DONATE TODAY!

Share this link on your Facebook page to donate directly to this campaign, click here. 

OR – create your own Facebook Fundraiser in honor of your child, family member or friend with 22q.

Visit our Fundraising Toolkit

There are many ways you can help with various fundraising ideas from home. Learn more!

SHARE YOUR STORY!

Share your own story or view the full selection of stories here from our Inspiration Page. Choose to share them on Facebook (@22qFoundation), Instagram (@22qfoundation) or Twitter (@22qFoundation) Or submit your story to be featured on our page during the month – click on the Inspiration Page link above for the questionnaire to fill out!

“What’s 22q?” … our goal during this month is to let the world know how complex a condition this is, how much all around support is sometimes required and how against many obstacles these amazing, beautiful children survive and thrive! Not forgetting the few that are lost far, far too soon. We want the world to know all sides and to recognize the beauty within these individuals.

When you share your story… you help us answer that question…

Share the stories as you see them on your page or feed and encourage your colleagues, family and friends to do the same.

CREATE A DAY IN YOUR HOMETOWN OR STATE!

Interested in Advocacy Declare November 22nd for 22q11.2!

Please help us create 22q11.2 Deletion and Duplication Awareness Days around the world! Help designate November 22nd as “22q11.2 Awareness Day” in your state, region or country. Learn more  

HAND IT OUT!

The International 22q11.2 Foundation is pleased to send you 10 free, wallet-sized, 22q “Z-Cards” that unfold into eight highly informative panels. These cards are ideal for sharing with others and will serve as a quick reference about 22q. Learn more

OTHER RESOURCES

22q11.2 Clinic Consortium Spotlight

The International 22q11.2 Foundation is spotlighting each of the dedicated 22q clinics around the world, as they share their information, so families can learn more about the clinics, their offerings and resources, as well as location and specialties.

**Don’t forget to mark your Calendars for the Eleventh Annual 22q at the Zoo for Sunday May 16th, 2021….

Many thanks on behalf of The International 22q11.2 Foundation and #22qAwarenessDays

 

 

 

 

 

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