22q at the Zoo

Guidelines from the International 22q11.2 Foundation

Thank you for agreeing to host your local 22q the Zoo event! This extraordinary event grows every year because of dedicated volunteers like you. To insure maximum success and awareness, the International 22q11.2 Foundation has developed guidelines for our awareness day. These guidelines are intended to create consistency from event to event and from year to year which will lead to increased impact.

For a history and background of the event, please click here. 


Please, whenever possible and where space permits, refer to and brand the event as:

22q at the Zoo Worldwide Awareness Day –

“An International 22q11.2 Foundation Worldwide Awareness Event – www.22q.org

In partnership with ______________________(add your group / organization name here if you have one)__________________


The name “22q at the Zoo” and the 22q at the Zoo logo are trademarks of the International 22q11.2 Foundation (the “Marks”). Once you have officially registered your city and zoo with the Foundation, you will be authorized to use the name of the event and given access to the official 22q at the zoo logo in high resolution graphics. You may use the name and logo on flyers and banners. Modification of the name or logo, or use of either in any way not previously authorized without the express written consent of the International 22q11.2 Foundation is prohibited. The Foundation will have the right to receive documentation, upon reasonable written request, of your use of the Marks and the goods and/or services provided in connection with the Marks. If you are not using the Marks in accordance with the Foundations instructions or in a way that meets its standards and policies as may be reasonably set from time to time by the Foundation, the Foundation may require you to stop using the Marks. This policy is in place because it is our intent to make the event stronger by improving the consistency and impact of the branding.


Because we don’t want our world to get too small, we request that you utilize and prominently display our “22q at the Zoo Sign-In Sheet.” The Foundation will provide you with a pdf version here. It is very important that: a) One person be assigned to make sure the sheets are readily available and visible, b) Guests are requested to sign-in, c) the sheets are collected and sent to the ­International 22q11.2 Foundation following the event by postal mailing or scanning and emailing, to info@22q.org for inclusion in our database. Zoo coordinators are asked to see that these steps are followed, including delegating the responsibility to another volunteer, if necessary. (We recommend printing out more than enough copies – just in case…)


The Foundation will provide you with brochures, flyers and related materials. Please make them visible and readily available during the event. Because this is a 22q-focused event, we encourage you to provide literature about local services that will benefit the 22q community. (e.g. schools, centers, groups, etc.)

As many other large Foundations partner to make 22q at the Zoo a success, we ask that you ensure that the International 22q11.2 Foundation materials are prominently displayed along with any other materials including your local or national foundation literature.


Soliciting donations at the zoo is prohibited. However, the 22q at the Zoo event is an important friend-raiser and could potentially be a fundraiser for the International 22q11.2 Foundation. We welcome any non-zoo related donations. Please encourage any interested donors to send a check to the Foundation at:

Intl. 22q11.2 Foundation

PO Box 532

Matawan, NJ 07747

or donate online at www.22q.org


All large event signage is requested to include a byline of “An International 22q11.2 Foundation Worldwide Awareness Event – www.22q.org and smaller signage to show “International 22q11.2 Foundation – www.22q.org.” If your group is an established nonprofit, we encourage you to include a byline of “An International 22q11.2 Foundation Worldwide Awareness Event – www.22q.org in partnership with ­­_______(add your organization name here) ________” and smaller signage to show “International 22q11.2 Foundation – www.22q.org. In partnership with ________(add your organization name here) ______”


Some of the families attending a zoo event will be recently diagnosed and/or meeting other families for the first time. Family to family contact and information sharing is essential for the well-being of the 22q community. In addition to sharing your own experience, please be sure to encourage all families to contact the Foundation where they can be directed to the most up-to-date information.


The International 22q11.2 Foundation, Inc. requests that you publicize your event with local media. This includes radio, TV and newspaper. You can find the most up to date Press Release here. (link)

We ask that you remember to name The International 22q11.2 Foundation as the sponsoring organization (in partnership with… as applicable). Media organizations often fail to mention the organizing organization as a way to save space or time.


The day of the event, we request that all event volunteers wear the official 22q at the Zoo T-shirt created by The International 22q11.2 Foundation, Inc. In an effort to save cost, past years’ shirts are also acceptable.

We would greatly appreciate if you would consider including a “thank you to the International 22q11.2 Foundation for creating and sponsoring today’s event.”

Thank you for serving as a representative of the Foundation during this very important event! We appreciate your conducting yourselves in a professional manner throughout. You and your team of volunteers are providing a great service and advancing the time when all impacted families are properly diagnosed and provided the best available treatments.



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