The International 22q Foundation is celebrating its 15th Anniversary!

2003 – 2018

We are celebrating 15 years of family support – supporting everything from advocacy to awareness to education to family networks to care and research. The International 22q11.2 Foundation has been working non-stop for you and with you for the past 15 years! Help us celebrate throughout 2018!

Over the last fifteen years, the International 22q11.2 Foundation has been successful in helping thousands of families through resources, valuable connections with top experts, creating awareness days, supporting research, and engaging with other support groups for advocacy and to deliver the most cutting edge information related to 22q. As we approach the next fifteen years, we want to expand our footprint and make 22q a household name.

Timeline of key milestones over 15 years! 

See how it all started 

Mark Abissi – Parent and Founding Chair of The International 22q11.2 Foundation 2003-2006

Paula Goldenberg Parent, Medical Advisory Board Past Chair 2007 -2010

Carol Cavana –  Parent, Administrative Chair, Founding Board Member, Secretary, and Past Chair 2010 – 2012

Sheila Kambin  Parent, Chair 2012 – 2019

Marc Weinberg – Parent, Chair 2019 – Current

Messages from Select Members of our Medical Advisory Board

Bruno Marino, MD
University La Sapienza – Rome, Italy

Pete Scambler, MD
Institute of Child Health – London, UK
Molecular Genetics

Solveig Oskarsdottir, MD
Queen Silvia Children’s Hospital – Goteborg, Sweden
General Pediatrics and Immunology

Ways to connect with the International 22q Foundation:

Get involved 



FaceBook Zoo





Family support network

Event and Awareness Campaigns

Annual Face of Sunshine Calendar Campaign

Annual 22q at the Zoo Worldwide Awareness Day

Other Awareness Campaigns

Same Name Campaign


11th Biennial International 22q11.2 Conference


Press Release 

My child has 22q Video

Resources for Families




Teens and Adults

Quotes from our 22q Community

Adult Inspiration

Gia Abissi








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