Noah Wilson

Noah is five years old and one of the most amazing children I have ever met! Some of Noah’s favorite things include riding his bike, swimming and playing mini golf! When I had Noah he was 7 pounds 7 ounces and healthy as could be! It was around six weeks old that Noah first got sick, and I started to question things. From that point on numerous little things started happening to Noah all of which added up to the genetic testing and discovery of the deletion when he was three and a half. I cried mostly but was also so relieved to have an answer, and something to start treating! We have been so extremely blessed although Noah faced numerous small issues like speech and being smaller than most kids his age he does not face any heart kidney or spine anomalies! We are so truly blessed to have Noah and together we are fighting to make 22q something everyone is familiar with!!!

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