Life Planning and Legal Support

Life Planning and Legal Support can help you better understand how to take the steps in planning for your child’s future. As parents and guardians, you are often busy with the daily challenges of raising a child with 22q.  By taking action early on, you can help protect your child’s future wellbeing and rest a bit easier.

For more detailed information or for additional support, please call (877) 739-1849 or email the Foundation at

The Achieving a Better Life Experience (ABLE) Act

New Website To Serve As ABLE Account Clearinghouse in USA

As states prepare to offer accounts that will allow people with disabilities to save without losing government benefits, a new website is launching to help families navigate the offering. The resource center website includes information about the law, ABLE accounts, who qualifies and particulars of each state’s legislation.

The Achieving a Better Life Experience (ABLE) Act, a federal law signed in December of 2014, will give many individuals with disabilities and their families the opportunity to save for the future and fund essential expenses like medical and dental care, education, community- based supports, employment training, assistive technology, housing and transportation.  The law allows eligible individuals with disabilities the ability to create “ABLE accounts” which resemble the qualified tuition programs, often called “529 accounts,” that have been established under that section of the tax code since 1996.  By saving for and funding critical daily expenses, these ABLE accounts will give US citizens with disabilities increased choice, independence, and opportunities to participate more fully within their communities. 

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 Legal Support

Whether you are in the early school years, adolescence, or transitioning to adulthood, an individual with 22q may require legal services regarding issues related to education advocacy, guardianship, and special needs trusts.  The following content is intended to be a helpful toolkit for parents and caregivers.

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