Behavior & Mental Health

Mental health and behavior issues are common in children and adults with 22q. Often times these diagnoses can be overwhelming for individuals and for their families or caregivers. Finding the right treatment and support can be very difficult to navigate as well. The following list of resources address some of the most frequent behaviors and the best way to seek help.

For more detailed information or for additional support, please call (877) 739-1849 or email the Foundation at

Routines & Children w/ Disabilities: Routines and Children with Disabilities

Routines can help family life run more smoothly. They can also be a way to help your child with 22q develop coping skills and manage anxiety better. While all families are different and schedules are different, the best routines are the ones that suit you, your child and your situation. To learn more, click here

 Children’s Mental Health Resource Kit

This Children’s Mental Health Resource Kit is designed to help you promote access to and the availability of mental health screens and assessments for children. Because navigating access to the appropriate services can be so overwhelming, this is an essential first step in ensuring appropriate mental health treatment for children. The kit contains a number of Fact Sheets and an Action Strategies and Resources Guide.

American Academy of Child and Adolescent Psychiatry: Family Resources

The mission of AACAP is to promote the healthy development of children, adolescents, and families through advocacy, education, and research, and to meet the professional needs of child and adolescent psychiatrists.  The following link provides useful medical definitions related to mental health, a child and adolescent psychiatrist finder and many other helpful resources for families and caregivers. To learn more, click here.


Does your child with 22q have difficulty falling asleep or experience middle of the night awakening? Some of the most common causes include sleep apnea, calcium disturbance, restless leg syndrome or often anxiety. Medical causes should always be ruled out before assuming behavior causes.

The following scientific review article is an excellent summary of the recommended evaluation and approach to treating this common problem.

Download the PDF here.

Worrisome Behaviors

Trying to tell the difference between what expected behaviors are and what might be the signs of a mental illness isn’t always easy. NAMI is an organization that provides tremendous support and resources to families affected by mental illness. This link reviews some of the most common warning signs related to mental illness.

Evidence-based mental health treatment for children and adolescents

To address the challenges of raising a child with 22q, including behavioral and psychiatric problems, families should be aware of the latest, scientifically-based information. Our advisors recommend the Effective Child Therapy website as a good start: The site has information on many of the more common child mental health issues and an overview of evidence-based practice for each condition. (Listed at the bottom of their homepage) To learn more, visit

General Support

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