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The International 22q Foundation takes our role as a non-profit organization very seriously to help share credible information to help slow the spread of the coronavirus (COVID-19) and help protect the communities we serve.

Although all in person events have been “postponed” in accordance with recent guidelines, the International 22q Foundation will still be here on line, for any questions you may have, and staff is working from home, to provide the most up-to-the-minute information.  

In these difficult times, please know that we are here for you–and your families — please be safe and stay healthy — and keep in touch with us!

Sincerely,

Your International 22q Foundation Team

COVID-19 Series for Individuals with 22q11.2 Differences 

What is COVID-19? 

Why should we stay home?

Staying calm during COVID-19

False information and scams

Immunodeficiencies and COVID-19

Heart conditions and COVID-19

Return to work/school

PCR VS. Antibody Testing

Allergies, Cold, Flu or COVID-19?

Masks: Why, When & How

COVID-19 Vaccines

Are the COVID-19 Vaccines Safe?

Italian Translation

Heart conditions and COVID-19

Children’s Hospital of Philadelphia “22q11.2 – Care During COVID-19 Symposium”

GREAT NEWS! If you missed Children’s Hospital of Philadelphia’s “22q11.2 – Care During COVID-19 Symposium,” we are making it available to our International 22q Foundation families now — see the link below!

This informational symposium coincided with 22q11.2 Worldwide Awareness Day on November 22, 2020 (22/11 in Europe) and Shining a Light on Chromosome 22q11.2 by illuminating monuments Red, across the world, including monuments around CHOP that evening in Philadelphia — Boat House Row, the Franklin Institute, and the Roberts Pediatric Research Building along the Schuylkill River!

The presentation lasts about 4 hours – you can check out a list of the presenters and their timing on the video here.

  • Setting the Stage: Donna M. McDonald-McGinn, MS, CGC, Director, 22q and You Center
  • One Patients Perspective on 22q11.2 Awareness Day – Storming Pennsylvania: Hannah Schilling
  • Managing Anxiety, ADHD and Headache: Madeline A. Chadehumbe, MD
  • Generalized Behavioral Challenges: Raquel Gur, MD, PhD
  • Remote Speech and Language Therapy: Cynthia B. Solot, MA CCC-SLP
  • Integrative Approaches to Managing Stress: Maria R. Mascarenhas, MBBS
  • Coping with Immunodeficiency: Kathleen E. Sullivan, MD. PhD
  • Moving Forward Together: Donna M McDonald-McGinn, MS, CGC

Newsletters from International 22q11.2 Foundation 

April 3, 2020 | Issue 1 

March 29, 2020 | Issue 2

March 20, 2020 | Issue 1

Video message from the 22q Society

During this difficult time, the 22q11.2 Society would like to send you the following video message.


Resources

Here is a tip-sheet from the Dalglish Family 22q Clinic about COVID-19

Rarechromo.org

Self-Isolation guide and resources 

Coronavirus update: Why does staying at home help?

Important Videos about COVID-19

The following videos are  made by 22q11.2 Scientific & Clinical Advisor Board of International 22q11.2 Foundation, Chair of Allergy and Immunology at the Children’s Hospital of Philadelphia, and Professor of Pediatrics at the Perelman School of Medicine of the University of Pennsylvania, Kathleen Sullivan, MD, PhD.

If you have any concerns about COVID-19 or any aspects of your health, please check with your healthcare provider.

Please visit the website of the Immune Deficiency Foundation for more information.

Video Updates: 

COVID-19 Update: July 17, 2020 

COVID-19 Update: June 23, 2020

COVID-19 Update: June 18, 2020 

COVID-19 Update: April 10, 2020

COVID-19 Update: March 18, 2020

COVID-19 Update: March 10, 2020 

COVID-19 Vaccine Update: November 25, 2020 

American Heart Association

Low risk of COVID-19 infection found among people with congenital heart disease can be viewed here.
Published October 14, 2020

The International Patient Organization on Primary Immunodeficiencies

Published an updated Joint Statement together with ESID, INGID, APSID, ARAPID, ASID, CIS, LASID, SEAPID and now also IUIS on the COVID-19 epidemics.COVID -19 – April 8, 2020

Disclaimer: This information is brought to you by the Foundation for educational purposes only. It is not intended to be taken as medical advice. If you have concerns, please talk to your healthcare provider.

 

 

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