Summary of 22q Community Survey Results

In October of 2015 the ­International 22q11.2 Foundation published an online survey as part an effort to better understand and meet the needs of the worldwide 22q community. Sadly, earlier in the year, two other national organizations for 22q closed. Understanding that the loss of these two organizations would have a significant impact of the flow of information to families, the ­International 22q11.2 Foundation prepared to adjust its priorities in order to address these changes within the 22 community. As part of our process, we created a 22q community survey.  Read more 




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