Dear Friends of The International 22q11.2 Foundation,
The International 22q11.2 Foundation is proud to say that we are: #22qEmpowered!
In fact, we are #22qEmpowered every single day of the year thanks to everything you have helped us to accomplish over this last decade! Because of your extraordinary generosity we have continued to build a strong 22q Community empowered by united voices supporting individuals and families affected by chromosome 22q11.2 deletion and duplication syndromes each and every day!
In 2018, The International 22q11.2 Foundation, Inc. celebrated our 15th anniversary – which means we have been helping patients, families, professionals, and partnering with other family groups around the globe to increase awareness, improve care, and support families since 2003! But we are especially grateful for the growth and success the Foundation has experienced in the last 10 years! TOGETHER, we have been successful in helping thousands of families through our awareness programs such as: our annual Faces of Sunshine Calendar; the ever important Same Name Campaign; and the single most well recognized event on the planet for raising 22q awareness, bringing families together, and making sure that no one should feel alone, whether they join us in person or virtually, 22q at the Zoo Worldwide Awareness Day celebrating its 10th anniversary on May 17, 2020. Concurrently, we maintain an active website to deliver the most cutting edge information related to chromosome 22q11.2 differences, via our world experts who volunteer as members of our International Medical and Scientific Advisory Board, providing invaluable resources to patients, families and the healthcare community at large.
Our hearts are joyful and inspired when we hear stories from our families affected by chromosome 22q11.2 differences, who are not only thriving but are #22qempowered to help others who may be struggling with a new diagnosis or complex related features, like Abby, who was diagnosed with a chromosome 22q11.2 difference when she was four years old. Abby has survived heart and lung surgeries and countless other illnesses. But, today Abby is a thriving sophomore in high school. Abby is on the honor roll. She is on the high school cheer team. She is a student coach for a 3rd-grade cheer team. Abby works part-time as a hostess. She has lots of friends and is learning to drive. We are grateful for Abby and her family who are willing to share their 22q journey with others. Abby’s Mom tell us that, Abby is lucky in many ways. We are lucky in many ways. In fact, just last week I was contacted by our local school telling us that a family has a child newly diagnosed with 22q and asking if we would be willing to be a resource for them? I answered immediately – absolutely!
We, like Abby, her family and other individuals and families like Abby’s, are here for you. We recognize that not all children, adolescents, and adults affected by chromosome 22q11.2 differences have the same journey as Abby – but it is our goal to make each and every individual journey as most easily navigable as possible for all families. That is why we were founded and this is our mission now and always.
As we approach the next 10 years, we know our greatest accomplishments still lie ahead. We are determined, more than ever, to expand our footprint and make 22q a household name. Most importantly we strive to improve the long term quality of life for those affected by chromosome 22q11.2 differences! We have many projects in the pipeline, including: airing our expert webinar series covering all aspects of chromosome 22q1.2 differences – coming soon to your home computer; supporting the 12th Biennial International 22q11.2 Professional Conference on June 23-26, 2020 in Split, Croatia; and celebrating the 10th anniversary of 22q at the Zoo Worldwide Awareness Day on May 17, 2020.
Won’t you join us in becoming #22qEmpowered? We certainly can’t do it alone. So, please consider making a year-end donation to enable us to provide the same level of support to the increasing number of families who are coming to attention and therefore coping with 22q11.2 deletion or duplication differences. Furthermore, please help us as we strive to bring 22q11.2 deletion and duplication syndromes to Newborn screening panels across North America and abroad – so no child, like Abby, should await diagnosis until four years of age. No question, your tax-deductible gift will have a lasting impact on the lives of all of these patients and families in need. Thank you in advance for your generosity.
Here’s to a wonderful holiday season and best wishes for Happy and Healthy 2020!
With warm regards,
Marc Weinberg, Esquire
Chair, International 22q11.2 Foundation, Inc.
Parent of Michael – with 22q11.2DS
The International 22q11.2 Foundation, Inc. is an IRS- approved 501(c)(3) nonprofit, Tax ID #: 36-4540878
PO Box 532 Matawan, NJ 07747 USA